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21-year-old Musaab repeatedly denied access to cancer care
Musaab is 21 years old and in his third year of study at university in Nablus, in the north of the West Bank.
In the summer of 2022, Musaab was diagnosed with a cancer called a synovial sarcoma in his left ankle. To confirm his diagnosis and to guide the best approach to his treatment, he was referred to Makassed Hospital in East Jerusalem for bone biopsy in June 2022, for an appointment on 6 July. Because Musaab has a West Bank identity card, he was required by Israel to obtain a permit to access East Jerusalem. He applied three times for a permit for his initial hospital appointment and was denied each time. The family were told that Musaab and his companions (different family members for each application) had been denied on security grounds. He eventually received the bone biopsy at Istishari Hospital in Ramallah, which meant he didn’t require a permit for his appointment.
Musaab was in Israeli prison from July 2020 to January 2021. It was during his detention that he started to feel pain in his left ankle. “He was given paracetamol, which didn’t help,” his father said. “He has been suffering a lot. He told me sometimes he felt as if his bone was being crushed.”
After his diagnosis, doctors considered to refer Musaab to Augusta Victoria Hospital, the major Palestinian cancer centre, in East Jerusalem. However, because he had been denied a permit to East Jerusalem previously, the doctors instead referred him to An-Najah University Hospital in Nablus, which meant he didn’t require an Israeli permit to reach care. Musaab received the chemotherapy he needed before he would undergo an operation. By November 2022, he was ready for surgery and his family applied for permits for him to reach Assuta Hospital in Tel Aviv. They wanted a private surgical consultation, to see the extent to which it would be possible to salvage Musaab’s leg. His three applications for a permit to reach two different appointments at the hospital were again denied.
Musaab’s father spoke with a doctor at Makassed Hospital to get advice on how to proceed. “He told me that repeatedly delaying surgery might cause bone erosion requiring leg amputation, God forbid.” The family had lost hope of obtaining a permit to access East Jerusalem, so Musaab’s father went to the Services Purchase Unit (SPU) of the Ministry of Health in Ramallah to request a change of destination to Jordan.
“Musaab and I travelled [to the Jordan border, the King Hussein Bridge] on 12 December. At the Bridge, we were asked to sit and wait. We waited about an hour, then an Israeli officer came out and asked us to go back to the West Bank. He said that we were both denied for security reasons. We refused to leave, and I requested to see the Mukhabarat [intelligence] officer. I insisted, telling them that my son has cancer and that he has the right to access health care. I asked them to let him go. After waiting another four hours, they decided to allow Musaab to cross to Jordan, but they made me return.” Although he crossed, Musaab missed his appointment at King Hussein Cancer Center in Amman, which had been for 12:30pm that day. The next available appointment was a week later.
“My son needs me beside him during these difficult times. We should see the doctor together so we can discuss the different options to help Musaab decide about the surgery.” Musaab’s father appealed through nongovernmental organizations Physicians for Human Rights Israel and Hamoked, as well as through a private lawyer, to get approval to travel to Jordan. He said, “This is so inhumane. How can this happen in any place in the world? Why are they blocking me from accompanying my son? I just want to hold his hand when he goes for surgery.”
Musaab is currently undergoing medical assessment in preparation for surgery. His mother crossed to Jordan on 20 December. His father is still hoping to join him1
Making health care services faster and easier for patients
10 January 2023 – Khetam, a mother of 2, has only brought one of her daughters to the primary health centre, though both are sick and in need of medical attention.
Her younger daughter has a very high fever and weakness. Khetam has had to prioritize her treatment today.
Khetam and her daughter at the Jabaliya Health Centre, Gaza Strip
“If I brought my other daughter too, we would have had to spend more time waiting to see the doctors, doing the paperwork, and running from one department to the other. If I forgot any of their medical notes, x-rays, or prescriptions, I’d have to spend even more effort going back and forth in trying to arrange these documents to get the treatment and medicines,” Khetam says.
Patients queue outside the doctor's office, Jabaliya Health Centre, Gaza Strip
In the past, she has sometimes waited hours to get the administrative paperwork done only to then be met with long queues outside the doctor’s office, which often end in bitter disagreements between patients over who’s turn it is.
For many like Khetam, this makes seeking health care for even the simplest of issues quite daunting, time-consuming and tiring.
A pleasant surprise
Today, Khetam’s visit to the health centre has been unlike in the past. She had blocked a few hours from her day but is pleasantly surprised at how quickly she has been able to see the doctor and get the medicines for her daughter.
“I didn’t have to spend ages getting the paperwork done, I didn’t have to wait a long time to see the doctor and now I’m on the way to the pharmacy without having to carry any files or prescriptions. The doctor has already sent it to them online. If I knew the system had changed and is so much quicker, I would have brought my other daughter for treatment too,” she says.
Change is under way at the Jabalia, Deir Al-Balah, and Sheikh Redwan primary health care centres in the Gaza Strip, which cover a catchment population comprising 180 000 people. With support from the Big Heart Foundation, WHO has facilitated expansion of the electronic health information system at these 3 centres. The system has already been introduced at 24 primary health care centres by the Gaza Ministry of Health, and other health partners.
Dr Abdelkarim looks at a patient's history on the new electronic health information system, Jabaliya Health Centre, Gaza
Change is being felt by everyone
The new paperless system has drastically streamlined patient information management and improved data flow between all departments, allowing seamless connectivity. Everything from the moment patients enter the health centre until they leave is now being managed through a unified system. This includes administrative paperwork for registering patients to receive treatment.
Riyad, who is suffering from an infection caused by stones in the urinary tract has come to the health centre for a check-up. His visit has gone smoothly.
“I came in, was given my number and saw the doctor without having to wait. Now, I’m on my way to the laboratory to get some tests. The doctor has already sent the test request to the laboratory, and I do not need to carry any papers there,” says Riyad.
By eliminating the need for patients to carry files and allowing better management of patient flow, thus limiting crowding, the new system is ensuring delivery of faster, hassle-free, and better quality health care services.
Improvements are also being felt by health workers.
“I used to have to do volumes of paperwork for each patient, but the system has really simplified my work and made data recording more accurate and reliable. It’s very easy to pull up someone’s medical history even if they lose previous reports,” says Dr Hesham, Family Doctor, Jabaliya Health Centre.
Dr Hesham shows the volume of paperwork he had to fill prior to the new electronic information system being introduced
Physicians can now record patient history, display test results, write prescriptions, order tests, receive clinical reminders, and print instructions, through one platform. The real-time, patient-centred records can then be made available instantly to other departments as needed, without the need for extensive paperwork, limiting human error.
Since August 2022, approximately 119 health workers across the 3 primary health care centres have been trained in using the electronic health information system
Dr Naseem’s experience of the August escalation
13 November 2022 – Dr Naseem reached home after a long shift at the hospital, ready to rest and recharge. He had been looking forward to spending time with his children but found it hard to shake off his worries and disengage his mind. The air felt heavy. The news about growing tensions in Gaza Strip seemed impossible to escape. WhatsApp groups were relentlessly pinging. Neighbours, family members, and people on the street were all talking about the same thing. Memories of the 2021 escalation were still fresh in their minds.
Dr Naseem, who works as the Head of Emergency at the Al Aqsa Hospital in the Gaza Strip, hadn’t been at home for long before the news of the August escalation broke. His phone rang shortly after. He knew precisely why he was being called. Hurriedly sipping his tea, he got ready for what was going to be a very long day ahead.
Within an hour of the call, he was at the hospital supervising staff to prepare for receiving and treating casualties. “We knew from previous experience that the situation could deteriorate quickly. We needed to act fast and get ourselves organized. Delays in getting the injured immediate care could cost lives during emergencies. There is no margin for error,” says Dr Naseem.
Dr Naseem, Head of Emergency at the Al Aqsa Hospital, Gaza
Equipped with new understanding from the mass casualty management training delivered by WHO, he declared a state of heightened readiness. “I had to start making decisions as we waited for the management to arrive,” he recalls.
He immediately began working with key teams to reorganize the hospital entrances and exits to prevent crowding and ensure optimal patient flow. An emergency triage area was set up, family and press waiting areas were defined, non-emergency patients were discharged or moved to make space for critical cases, and 50 emergency medical kits were prepared to be deployed.
Dr Naseem, points to the hospital gate that was converted to an entrance for causalities for effective management of crowds during the August escalation
“We had developed the hospital emergency plan during our training and now we are putting it into action. Though we all did our best during previous emergencies, the ad hoc approach added to the chaos. This time was different. We were like a well-oiled machine, all units working together as one against a plan,” says Dr Naseem.
He is one of 90 clinical and non-clinical health workers trained on mass casualty management protocols since June 2021, using a curriculum developed by the WHO Academy. Thanks to support from the European Union Humanitarian Aid, Italian Agency for Development Cooperation (AICS), and Swiss Development Cooperation (SDC), the training has improved the emergency preparedness and response capacity of hospitals and health workers. It has also provided a systematic method to equip health workers with standardized skills, ensured that they speak the same technical language, and follow a clear hospital emergency plan.
A tabletop exercise session during the mass casualty management training in the Gaza Strip
In the future, this approach will allow the emergency deployment of Dr Naseem and many like him to any of the 7 main hospitals in Gaza to ensure adequate availability of health workers during crises.
“I’m used to difficult situations, but the calm I felt this time was something else. I think it comes from the feeling of being prepared and organized. It also allows introspection. We now have set standards that we need to hold ourselves to and benchmarks to evaluate our response against to ensure ongoing improvement – a first for us”, says Dr Naseem.
Emergency operation centre inaugurated in Gaza
Gaza, 8 November 2022 – Gaza’s first emergency operation centre (EOC), established by WHO under the leadership of the Gaza Ministry of Health, was inaugurated today. The inauguration was attended by Dr Yousef Abu-Al Rish, Gaza’s Deputy Minister of Health and Dr Rik Peeperkorn, WHO Representative in the occupied Palestinian territory, along with health experts from Gaza.
The EOC will provide an essential platform for strengthening multisectoral coordination and planning by experts and key stakeholders for public health emergencies, in line with the 2005 International Health Regulations (IHR).
“The inauguration of the EOC is a huge step in enhancing Gaza’s preparedness and response capacity against public health risks and emergencies. It will substantially improve data-sharing and analysis to drive evidence-based decision-making and inform mitigation and response activities,” said Dr Abu-Al Rish.
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The COVID-19 pandemic, recurrent escalations in conflict and other health emergencies in Gaza underscore the need for continued investment in improving emergency preparedness and response capacities. The establishment of the EOC is part of WHO’s ongoing support to the Gaza Ministry of Health in building and expanding responsive and resilient public health systems and infrastructure.
“The newly established EOC is a clear example of WHO’s efforts to translate commitment into action. It will play a vital role in alleviating the pressure on the health system during future public health crises by ensuring effective planning, preparation and response, which in turn will save time, scarce resources and lives,” said Dr Peeperkorn.
WHO support for the establishment of the EOC amounts to US$ 380,000, thanks to contributions from Canada, Germany, Italian Agency for Development Cooperation (AICS) and Kuwait. It includes technical support and the provision of equipment and furniture.
